Beyond the "Cause": What the Autistic Community Actually Needs
Countering the regime’s focus on preventing Autism (by highlighting what is truly needed: funding for services, inclusion, and quality-of-life research).
I am Autistic, not a “person with Autism“ - because “without Autism“ I would not be the same person.
Being Autistic impacts every aspect of my essence, from my interests, strengths, and weaknesses, to the people and activities I enjoy immersing myself in (and the depth with which I dive into my passions and my relationships with others).
Being Autistic is a whole body experience, one that is intertwined with every facet of my identity, including the way I move through the world (physically and mentally), as well as how I engage with social constructs (like gender, time, money, and the way I view the world and its systems).
Autism is not something that could be removed from me without completely changing who I am as a person and how I perceive the world around me.
Despite what our government wants the world to believe about Autistic People, my life as an Autistic Person is not a tragedy, and (even if it were possible, which it isn’t) I’d never want “a cure“ for being Autistic (or to give up my Autistic brain).
While some who share this Neuro-Type with me do prefer to call themselves “people with Autism“ (and I don’t see it as my place to correct them), in my own writing I do not use this language, due to my own preference, and because I firmly believe that the use of this type of description for Autistic People can lead non-autistics to falsely believe that Autism is something that could be “removed“ from an Autistic Person, enforcing the ideals that non-autistic people are the baseline of society (something I strongly reject).
I personally feel the phrase “person with Autism“ is dehumanizing because:
It suggests Autism is a separate accessory, like a sickness one can have or not have. In reality, being Autistic shapes how a person thinks, feels, and experiences the world—it’s a fundamental part of who we are, not a separate condition we carry (or can set down).
The phrasing reinforces the harmful idea that you could “remove“ a person’s Autism and the “real“ person would be left underneath. This fuels the search for a “cure“ for Autism, which many Autistic people see as a search for a cure for our very identity.
When we insist on focusing on “the person first,” we ignore Autistic People’s personhood. This phrasing is often used to soften the reality of Autism for non-autistic people, implying that an Autistic person’s humanity isn’t automatically seen when being Autistic is acknowledged, framing Autism as something so negative that it overshadows a person’s humanity.
In recent months, the Trump Regime’s “Make America Healthy Again“ (MAHA) movement’s main conversation around Autism and Autistic People has been about finding what causes us to be Autistic and how to “cure Autism,” or how to “prevent“ future Autism (how to stop more Autistic People from being born).
This is dehumanizing to Autistic People because:
It frames our existence as a mistake. By focusing on “preventing” Autism, the message is that people like us should not have been born (and that the world would be better off without us). This treats a core part of who we are as a defect to be eliminated.
It suggests we need to be “cured” to have value. The search for a “cure“ implies that our natural way of being is a disease that needs to be fixed. It dismisses our identities and tells us we are not acceptable as we are.
It talks about us as a problem to be solved, not as people to be supported. This political focus spends energy and resources on trying to make sure future people aren’t like us (instead of using those resources to help living Autistic People with services, inclusion, and a better quality of life).
This “prevention“ mindset directs public attention, money, and research away from the things that actually help Autistic People live better lives.
I’ve seen where this type of mindset leads us.
Nine years ago, when I was newly diagnosed as Autistic, there were Facebook groups full of what we called “Bleachers” (parents who were convinced, falsely, that Autism was a parasite that could be removed from their Autistic loved ones, by giving them bleach enemas and other non-scientific means), encouraging other parents of Autistic children to do the same.
If we go back even further, we find a dehumanizing quote from Ole Ivar Lovaas, one of the founding fathers of ABA (Applied Behavioral Analysis), in the January 1974 issue of Psychology Today magazine:
“You see, you start pretty much from scratch when you work with an autistic child. You have a person in the physical sense—they have hair, a nose, and a mouth—but they are not people in the psychological sense. One way to look at the job of helping autistic kids is to see it as a matter of constructing a person. You have the raw materials, but you have to build the person.“
While Lovaas is long gone, his ideals of building a person and programming Autistic People to be “socially acceptable“ are still widely embedded into practices used to forcibly assimilate Autistic People even today (and into the marketing materials of these and other assimilation-based programs, that focus on modifying Autistic individuals to fit into society without modifying society’s systems to better accommodate Autistic People).
When we focus on “removing Autism from society,” we are distracted from the actual needs of Autistic People, diverting funds that could be focused on inclusion and quality-of-life research.
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I hope this helps,
- Lyric Lark Rivera
