What it’s like when you’ve adjusted to your diagnosis? - The Journey to Self Acceptance Doesn’t End with a Diagnosis
This journey is never over because each day will present unique challenges and opportunities for growth as I learn and evolve as a person.
Welcome back to another Founding Member Friday!
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We currently have nine founding members. I won't put them on the spot today, but you know who you are. I can't thank you enough for your support.
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When I was in School, the teachers taught a curriculum that often was uninteresting to me, which (combined with the particular focus of my Autism and the difficulty in controlling attention that came with ADHD) made learning difficult.
They never asked (or taught) me what I wanted to learn (which wasn't their fault), but had they asked me about what I was interested in or wanted to know, they would have found that I was inquisitive and could even be attentive to suitable topics.
I always try to learn from the mistakes my teachers made with me, and I always want to teach my readers about topics that interest them (you).
Today's topic comes from our Substack Community:
Mosaic of Minds asks: What it's like when you've adjusted to your diagnosis (the journey to self-acceptance doesn't end with a diagnosis)
So,"What's it like when you've adjusted to your diagnosis?"
Honestly? I'm STILL adjusting.
I didn't find out I was Autistic until I was 29 years old, and the ADHD a few years later. I've really only known or even suspected I might be NeuroDivergent for the past seven years. That's only six and a half years of knowledge about my true self - not much when you consider I am working to undo 29 years of trauma from thinking I was NeuroTypical.
I learned the truth about my brain only because I reached a mental and physical health crisis when my world started falling apart.
When I was first diagnosed Autistic, it was because all of the coping and non-autistic emulation skills that I'd depended on for most of my life had failed.
There are multiple traumas I was recovering from, one of the first being my lack of boundaries that originated from feelings that I wasn't enough and therefore needed to give (or be useful and productive) at all times to have value and be worthwhile.
Growing up being Autistic, Hyperlexic, and ADHD meant that in many things I did (even when it was my best), people would ask me to "try harder" or "apply myself" and "put in more effort." I kept pushing and pushing myself to do and be more (than I even really wanted to be) because people kept asking more and more from me (than I was capable of).
An entire lifetime of my best not being good enough had me drowning in feelings of inadequacy, anxiety, and unattainable perfectionism that left me frozen and unable to act, start, or finish projects (out of fear they wouldn't be enough).
I wasn't enough, and nothing I did could ever be sufficient either, in the eyes of those around me and in my own mind as well.
One of the first lessons I had to teach myself was:
NOTHING is PERFECT: to let go of perfectionism and realize when something is done. Because, in my mind, nothing I do is ever done or enough, this has been hard, and I'm still working on it.
I also had to learn: That I was enough and my best (if I knew it was my best) had to be sufficient (regardless of what other people around me said or thought).
These two lessons were connected for me, as I needed to learn how to stop before I overworked my projects (OR MYSELF) so that I could learn what my reasonable best was (not the unrealistic and forever out-of-reach "best" people around me expected).
For most of my life, up until that point, I had been in an endless cycle of burnout (because I didn't know that my pace, skills, and weaknesses could and should be different from the people around me). I would hit "the wall" where most people would "tap out" and keep pushing, ignoring my need to stop or rest (because that's what had always been expected of me).
I had to learn that I was worthy of rest (because rest is needed to keep me "going"). I also had to realize that I don't have to earn rest and shouldn't feel guilty for taking time to rest when I'm tired.
Here is how I look at rest these days: I am not unlike my laptop or phone, with a battery that needs to be recharged regularly.
If I do not recharge one of my electronic devices, they will not work. Similarly, if I do not recharge myself, I will also start to malfunction and eventually stop "working" as I should.
Getting a good night's sleep is my "minimum" requirement for rest, the equivalent of recharging a phone or laptop overnight when you go to sleep but NOT plugging it in or adding charge to it throughout the day as you drain the power out of it.
Your battery performance may vary depending on usage (the different apps and tasks you perform on your device throughout the day). Certain apps and tasks can quickly drain large chunks of battery, and other tasks and apps can run in the background all day without draining much power.
Humans are similar in many ways. Depending on our NeuroTypes (or brain types), the tasks and activities that drain or recharge each person will vary. To take care of our brains and keep things balanced, we must be mindful of the types of activities and environments that drain or invigorate us so that we can appropriately know how (and when) to recharge ourselves (so we don't run out of energy).
Founding Members have access to the end of this story as a thanks for their support.